1. Will there be virtual options for the 2027 event?
There will not be a live virtual option. We will be recording the different sessions so you can view them at any time after the event. This will be available online a few weeks after the event. Stay tuned to social media and our newsletters for more details.
Check out 2025’s playlist by click here.
2. How old do you have to be to attend Congress?
General Congress – The event content is created for young adults aged 18-35 years old. This event is also for professionals of any age to learn more about the community. Please note that we will not offer any childcare options.
If you are interested and are not 18-35, please register as we are not strict on the age range we just highlight this as most of the content is created for young adults
Juvenile Onset HD Track – We encourage families impacted by JoHD, including under 18, to attend. If under 18 please ensure a caregiver and/or guardian is registering with the applicant as well.
3. Is the event just for young adults?
It is for everyone involved in the HD community and/or impacted by HD. Congress is for professionals doing research and scientific work in HD, HD advocates and general community members, and family and friends from the HD community. We will provide daily training with sessions for all types of audiences.
4. Do I have to be an expert in HD to attend?
No—all are welcome! We encourage scientists, researchers, professors, and other professionals who work in the HD field to attend. This event is intended to support, educate, and empower young people impacted by HD. If you want to familiarize yourself with scientific and research terms related to HD, we encourage you to explore HDYO’s research terminology guide.
5. Will there be translation services available?
The event will be hosted in English. Please reachout to marisa@hdyo.org with any questions about translation services. We will be working on translation services once we have determined the funding to support this.
Interested in supporting translation servies? Donate here.
6. Will childcare be available at the event?
No, childcare will not be provided as part of our event. Children are welcome and we had all age ranges attend previously events. There will be no childcare available nor a specific childcare space.
7. Is Congress like an HDYO camp where HDYO funds your trip?
No, congress is different to a HDYO camp where everything is covered by our funding and the young person pays nothing. For Congress, young adults will have to pay their own way to attend. We do have a scholarship fund available to those that may need some help getting there.
8. Are meals included in your registration?
We will provide some meals. Breakfasts will be your own responsibility, we encourage you to look at hotel options that include breakfast. Lunches will be served and some dinners. Please check the agenda or reachout to marisa@hdyo.org if you have questions about meals.
9. What hotels can we stay at?
HDYO has special rates at a range of nearby hotels. Visit our “Accomodation” page to see what special rates we have available.